Northern Arizona University
In Native American tribes, community health representatives (CHRs) are unique and valued members of the health care system serving their communities. New research out of Northern Arizona University shows that despite their critical importance to the community, community health representatives lack the support needed to do their work effectively.
Samantha Sabo, an associate professor for Northern Arizona University’s Center for Health Equity Research and for the Department of Health Sciences, said community health representatives play a critical role in care coordination and case management for their clients — work that is even more valuable during the COVID-19 pandemic.
Sabo, along with Louisa O’Meara and Alisa Neel, both research assistants at the Center for Health Equity Research, recently completed the second phase of a two-phase published report — Community Health Representative Workforce Assessment 2020 and 2019 — for the Arizona Advisory Council on Indian Health Care (AACIHC), in collaboration with the Arizona Community Health Representative Coalition.
“Community health representatives are considered by many to be the backbone of health care delivery in Native American communities,” Sabo said. “Their work is invaluable, which we are seeing highlighted now more than ever as they provide essential support for public health efforts to combat the COVID-19 pandemic.”
In both phases of the Community Health Representatives Workforce Assessment, researchers collaborated with the Arizona Advisory Council on Indian Health Care to develop and conduct interviews with community health representatives managers in Arizona focusing on program organization, structure, financing, health system integration and evaluation.
This workforce has been in existence for 52 years and serves as the oldest and only federally funded community health workforce in the United States.
The researchers found that nationally, the community health representatives workforce consists of approximately 1,700 workers representing 264 tribes. Of the 22 tribes in Arizona, 19 operate a Community Health rRepresentatives Program and employ approximately 246 community health representatives, which is equivalent to 30 percent of the total community health worker work force in the state.
Work of community health representatives includes:
- Home visits
- Patient monitoring and screening, including blood pressure, blood sugar
- Case management and care coordination
- Patient advocacy
- Referrals to service providers
- Health education, including chronic disease prevention
- Non-emergency transportation services
- Medical interpretation and translation
Community health representative programs are all tribally directed, which allows each program to tailor its efforts to the specific needs of its community. Center for Health Equity Research researchers found that community health representatives are highly focused on improving a number of critical social determinants of health for their clients, including increasing their clients’ access to health care through screenings, transportation and care coordination and direct health care services.
Because community health representatives are from the communities they serve, they play a unique and essential role as cultural and linguistic bridges between their patients and the medical establishment. Additionally, community health representatives serve as advocates for their clients and their communities, maintaining close working relationships with other tribal programs, health care providers, state entities and the Indian Health Service (IHS) system.
“We know the community health representatives workforce is critical to the health and well-being of tribal community members throughout the U.S., especially now during the COVID-19 pandemic, where tribal communities have been disproportionately affected with COVID-19-related hospitalization rates six to eight times higher compared to white community members,” said Kim Russell, executive director of the Arizona Advisory Council on Indian Health Care. “Every day, we hear of new ways community health representatives serve as the vital link between community and health systems in care coordination, contact tracing and surveillance and in ensuring community members are able to prevent COVID-19 by addressing the social determinants of COVID-19, including access to water, food and medicines.”
Barriers for community health representatives programs
Despite being an integral part of health care delivery in their communities, community health representatives were found to face a number of barriers to full integration into the greater health system. These included gaps in communication and information-sharing practices, as well as a lack of understanding of the community health representative workforce among health system staff, including health care providers.
Another challenge for community health representative programs is that they are unable to accurately evaluate the impact of their activities, as they lack access to effective data management systems that would enable them to track both process and outcomes measurements.
“There is significant anecdotal evidence for the effectiveness of community health representative work on improving health outcomes among their clients,” O’Meara said. “However, community health representative programs need access to data tracking tools to prove their value and impact on the communities they serve in order to ensure continued federal funding.”
The researchers also found that community health representative programs participating in their assessment had to employ a variety of financing strategies to sustain their programs, supplementing Indian Health Service funding with limited Medicaid reimbursement, tribal general funds, and grants.
Finally, this workforce assessment provides several policy recommendations, focusing on improving health system integration, program evaluation and financing, which aim to support the future sustainability and growth of the community health representatives program.
“The three strategies community health representatives tribal programs in Arizona have been focusing on are to sustain the workforce by providing reimbursement for the services they provide, whether through Medicaid or other third party insurers; attaining Community Health Workers certification, which documents a standard of skills and competencies they possess; and further integrating community health representatives into primary medical teams,” Russell said.
For more information on the phase I and II reports, visit the Center for Health Equity Research Community Health Workers page.